Rare Disorders Denmark

Rare Disorders Denmark is a national alliance of 43 small rare disease societies. The societies are run through voluntary work by patients and their relatives. Rare Disorders Denmarks work is based on volunteers and a minor professional secretariat.
Rare Disorders Denmark has three main tasks:

1. To advocate the interests of people suffering from rare disorders and work to secure access to relevant diagnostics, care and resources.
2. To create and disseminate new knowledge about living with a rare disease.
   
3. To be a platform for the member societies and to be a forum for the exchange of ideas and experiences.
   

Rare Disorders Denmarks ambition is to work for all rare citizens, also those without a patient network or society.