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Rare disorders in Denmark
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Member Organisations

Association of Children with Undiagnosed Disabilities

Danish Association for Neurofibromatosis Recklinghausen

Danish Cystic Fibrosis Association

Danish Mitochondrial Society

Danish Organization for Fabry Patients

Gaucher Association Denmark

Huntington's Disease Denmark

Moebius Organisation, Denmark

Porphyria Association Denmark

Prader Willi Syndrome Association Denmark

PV – The Association of Polycythemia Vera in Denmark

Restricted Growth Association of Denmark

The Danish Alpha 1 Association

The Danish Angelman Syndrome Organization

The Danish Apert Syndrome Association

The Danish Association for Albinism

The Danish Association for Crouzon Syndrome

The Danish Association for Dysmelia

The Danish Association for Immunodeficiencies

The Danish Association for Sotos Syndrome

The Danish Association of Galactosaemia

The Danish Bladderexstrophy Association

The Danish Ehlers-Danlos Society

The Danish Haemophilia Society

The Danish National Association for Marfan Syndrome

The Danish Rett Syndrome Association

The Danish Spielmeyer-Vogt Association

The Danish Spina Bifida and Hydrocephalus Association

The Danish Tourette Syndrome Association

22q11 Foreningen Denmark

The Danish Tuberous Sclerosis Association

The Danish Von Hippel-Lindau Association

The Danish Wilson Patient Association

The Osteogenesis Imperfecta Society of Denmark

UniqueDenmark

22q11 Foreningen Danmark


Sjældne Diagnoser | Frederiksholms Kanal 2, 3. | 1220 København K | Tlf: 33 14 00 10 | E-mail: mail@sjaeldnediagnoser.dk