Board of Directors

President
Ms. Birthe Byskov Holm (The Osteogenesis Imperfecta Society of Denmark)

Member of the Board
Ms. Liselotte Wesley Andersen (The Danish Tuberous Sclerosis Association)

Member of the Board
Ms. Lærke Olsen (Danish Association for Neurofibromatosis Recklinghausen)

Member of the Board
Ms. Lady Mariette Rytter Larsen (Danish Organization for Fabry Patients)

Member of the Board
Mr. Sven Fandrup (The Danish Association for Immunodeficiencies)

Substitute to the Board
Ms. Maria Krogh (Danish Gaucher Association)
Mr. Kjeld Christensen (The Danish Tourette Syndrome Association)
Mr. Preben Sindt (The Danish Rett Syndrome Association)
Ms. Susanne Rathke (UniqueDenmark)